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Stina Melander & co-authors on Ideology, Representation, and Legitimacy in a Swedish Disability Organisation

Stina Melander, Julia Bahner and Oskar Krantz have published the article “The Personal is Political – And Then What? Ideology, Representation, and Legitimacy in a Swedish Disability Organisation.” in Scandinavian Journal of Disability Research.

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Senior Lecturer Stina Melander, Department of Political Science.

Abstract

Background: Who can or cannot claim to represent other members within the disability rights movement has been discussed for decades, mainly concerning being disabled as an eligibility prerequisite.

Aim(s): The aim is to analyse arguments concerning representational claims within a Swedish disability rights organisation (DHR, Disability Human Rights).

Method: Every member of DHR was given the opportunity to answer three open-ended questions. Answers were subjected to a qualitative content analysis.

Results: Two main dimensions of arguments were found. The ideological dimension legitimises representation through lived experience or a human rights approach. The pragmatic dimension legitimises representation through relational claims or organisational necessities. Further analysis revealed a paradox: When a representative is required to have a body with certain characteristics, other knowledge-related aspects risk devaluation.

Conclusion(s): Paradoxically, the organisation has a goal of rendering impairment irrelevant in society, while rendering impairment a main issue when electing representatives.

Link to the article: https://doi.org/10.16993/sjdr.1001

Stina Melander's personal page